bdfa-uk.org.uk Report : Visit Site

Technical data of the bdfa-uk.org.uk

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general : 01252 416323 | fundraising : 07876 682589 | support: 0800 046 9832 batten disease family association | charity number - england & wales 1084908 / scotland sc047408 | donate home bdfa team professionals contact us join us newsletters reports & policies agm batten disease about batten disease cln1 disease, infantile onset and others cln2 disease, late-infantile cln3 disease, juvenile cln8 disease, epmr and late infantile variant variant late infantile onset ncls: cln5, cln6, cln7 and cln8 diseases & others cln10 disease, congenital, neonatal and late infantile adult onset ncls family support support resources batten clinical nurse specialist bereavement support transition bdfa family folder hospices heather house grandparent support sibling support sibling stories activities and leisure family stories education information for parent or carers information for schools fundraising fundraising resources challenges/events community just giving guide gift aid foundations corporate legacies london marathon walk research batcure news shop home our mission our mission is to enable everyone who is affected by batten disease to live life to the full and to secure the care and support they need until we find a cure. the bdfa offers informed guidance and support to families and the professionals who work with them as well as actively increasing awareness of the disease and funding future research to identify potential therapies and ultimately a cure. our plans a. employ a full-time support and advocacy worker b. operate a freephone helpline c. commission the first batten disease clinical nurse specialist in the uk d. operate a small grant scheme to help meet the needs of caring for a child or young person living with batten disease. e. increase our research funding in the uk and worldwide into potential therapies and ultimately a cure. latest news london marathon walk join us for this year’s london marathon walk on 22nd september 2018, taking in some of the capital’s iconic sights and less-visited corners. the route passes locations used in 26… read more thank you lucy! – office manager update we are sorry to announce that lucy roose the bdfa office manager will be leaving the batten disease family association on 29 june to start her theological training to become… read more petition delivered to number 10 downing street thank you! over 295,500 people signed the petition calling on nice to approve the treatment for cln2 and nhs england to fund the treatment. this is an amazing achievement so… read more update to our small grants programme it is with regret that bdfa has decided to suspend our small grants programme of financial assistance to families until further notice. this is not a decision that has been… read more please donate to the batten disease family association donate where are we? our registered office is: the old library 4 boundary road farnborough gu14 6sf contact us general: 01252 416323 [email protected] fundraising: 07876 682589 [email protected] support : 0800 046 9832 [email protected] additional links accessibility statement terms and conditions privacy policy sign up for news & updates leave this field empty if you're human: copyright 2014 - all rights reserved - designed by digital85 make a donation: to make a donation to the bdfa please click the button below which will take you paypal. you can also text donate text the words bdfa15 £2 / £5 / £10 to 70070 all donations help us to provide the best support we can to families affected by batten disease. thank you for your support.

URL analysis for bdfa-uk.org.uk

http://www.bdfa-uk.org.uk/sibling-support/
http://www.bdfa-uk.org.uk/heather-house/
http://www.bdfa-uk.org.uk/governanceelections/
http://www.bdfa-uk.org.uk/thank-you-lucy-office-manager-update/
http://www.bdfa-uk.org.uk/anna-pickerings-sibling-story/
http://www.bdfa-uk.org.uk/foundations/
http://www.bdfa-uk.org.uk/who-we-are/
http://www.bdfa-uk.org.uk/corporate/
http://www.bdfa-uk.org.uk/professionals/
http://www.bdfa-uk.org.uk/activities-and-leisure/
http://www.bdfa-uk.org.uk/batcure/
http://www.bdfa-uk.org.uk/information-for-schools/
http://www.bdfa-uk.org.uk/grandparent-support/
http://www.bdfa-uk.org.uk/london-marathon-walk/
http://www.bdfa-uk.org.uk/what-is-batten-disease/

Whois Information

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Error for "bdfa-uk.org.uk".

the WHOIS query quota for 2600:3c03:0000:0000:f03c:91ff:feae:779d has been exceeded
and will be replenished in 234 seconds

WHOIS lookup made at 05:23:33 08-Sep-2017

--
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:

Copyright Nominet UK 1996 - 2017.

You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS bdfa-uk.org.uk

  PORT 43

  TYPE domain

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2017.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at http://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

DOMAIN

  NAME bdfa-uk.org.uk

NSERVER

  NS.MAINNAMESERVER.COM 79.170.40.2

  NS2.MAINNAMESERVER.COM 79.170.43.3

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